Cystic Fibrosis Trust

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Record Number: 1551

Address:
11 London Road
Bromley
Kent
BR1 1BY

Phone: 02084 647211
Main office

Cystic Fibrosis Helpline: 0300 373 1000

Benefit Advice Helpline: 0300 373 1010

Welfare Grants Helpline: 0300 373 1020

Email: enquiries@cftrust.org.uk Website: http://www.cftrust.org.uk

Services

The Cystic Fibrosis Trust comprises branches and groups throughout the United Kingdom who work to improve the lives of cystic fibrosis (CF) sufferers through information, advice and advocacy, raise the profile of cystic fibrosis and fund research into a cure and better treatments.

Advocacy

The CF Trust now provides a UK wide Advocacy Service. Advocates who all have cystic fibrosis and are located across the whole of the United Kingdom actively seek the views and concerns of the CF population. This includes all patients, young and grown up and their families. It is not an individual complaints service, the advocates represent groups of patients and act as their voice in raising concerns with clinicians, CF Teams and with the authorities who allocate resources for CF services.

Benefits Helpline - Tel: 0300 373 1010

The helpline offers support and advice on the completion of the Disability Living Allowance (DLA) form, specifically relating to cystic fibrosis and how best to complete it to ensure the right Care and/or Mobility rate. The Benefits Helpline can also give general advice and information about other benefits.

CF Helpline - Tel: 0300 373 1000

A confidential service that enables anyone to obtain information, advice and support on any aspect of cystic fibrosis.

Welfare Grants Helpline - Tel: 0300 373 1020

The Cystic Fibrosis Trust has a small grants scheme for those experiencing particular difficulty at a time of stress or crisis relating to cystic fibrosis (CF).

Most areas of need will be considered but funds are limited and no help can be given with debts or ongoing expenses - such as driving lessons or the cost of running a car - or with major projects such as home improvements / maintenance or purchasing a car.

The Trust will try to meet requests unlikely to be considered by any other organisation, for example:

assistance to purchase household items directly relating to cystic fibrosis
financial assistance for those setting up home for the first time
funding a young adult's first annual prescription prepayment certificate
help with costs during hospitalisation
help with funeral costs
help with the cost of a necessary break after a period of stress or crisis
paying for help in the home which may mean keeping the person with cystic fibrosis out of hospital